Commentary: How Patients Have Transformed A Medical Meeting About Breast Cancer
By speaking up, advocates at the meeting have shifted the direction of breast cancer research. Some are alive, improbably, as a consequence of new treatments enabled and promoted by their advocacy. ...
Is There A Better Place To Decide What’s Right For Patients?
Who should decide when evidence for a drug sufficient to support a patient’s decision to give it a try?...
At Penn State, THON—The World’s Largest Student-Run Charity—Helps Kids with Cancer
Dancing for cancer may seem a crazy idea, paradoxical, and wildly inefficient as a fundraising scheme. But it’s become the thing to do, a good karma-generating phenomenon, and year-round source of pride for the Penn State community...
‘Until 20,’ A Film About A Young Cancer Patient’s End-Of-Life Decisions
This is a true story about a brave young man with osteosarcoma. But it’s more than that. This is a documentary about end-of-life decisions, and how a family copes...
Lip Service To Patients And Caregivers, Or Respect? The Significance Of An FDA Panel’s Review
..as if mothers telling an FDA panel about what’s happening to their kids with Duchenne muscular dystrophy, a disabling condition, is the opposite of science...
At A Conference On Cancer, Patients Take Notes Like Their Lives Depend On It
Online communities can be terrific. But in person, patients hug one another, and develop trust, bonds that last, hopefully, from one year’s meeting to the next...
Notes From The ‘Die-In,’ A Demonstration For Metastatic Breast Cancer
Die-in for metastatic breast cancer, Washington DC, October 13, 2015 (photo courtesy of Zachary Parker)...
Can Anyone Be a Patient Advocate?
Can a good doctor, or a nurse, or a physical therapist, or any other person employed by the health care system, serve as a patient advocate?...
Looking Back on ‘The Normal Heart,’ and Patients’ Activisim
They were impatient with the pace of research and physicians’ protocols, and spoke out emphatically about their needs: for more research; for prevention and treatment; for easier access to new drugs; and, simply, for ood medical care...
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